Friday, November 18, 2011

18.11.2011

Instead of saying "Stella, leave your brother alone" or "stop taking your nappy off"

I have to say to my daughter,

"Stella, take a breath" and "Please swallow baby"



This is an incredibly life deliberating disease that deserves more research and more funding.

Seven months ago I had so many hopes for my girl, what she will be like in high school, what kind of woman she will be grow up to be. I knew she would always be strong and opinionated - she was a vivacious girl and still is on the inside.

Today, I just wait for one smile, one connection, each day at a time.
We've spent a few days at hospital this week. She's home now and is on the mend but every sickness knocks her little brain and body back 10 steps.
........................

Please, cuddle your little ones and never ever take for granted what you have. I know it’s a cliché thing to say but I really do mean it and I’m living by it every single day.


15 comments:

  1. Oh Chels :(. You truly are amazing and it is so true that we should never take for granted what we have. What you are going through just seems like too much to bear. All my love to you beautiful xoxo.

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  2. Forgot to add that the photo of you and Stella is so precious. Two beautiful girls <3.

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  3. Chelsea ur strength is amazing Stella n Jett are absolutely gorgeous... I remember seeing you; Jett and Stella in Kmart when Jett was just a newborn... My heart broke for you when i found out about Stella... And it still does i have lost children and i never wanted anyone i knew to go thru what ive been thru... You have an amazing strength Chelsea and i am personally honoured to say i have known you... Stella and Jett are the luckiest children to have you and Scott as their parents... You all remain in my thoughts and prayers daily... Much love and many blessings xoxo

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  4. biggest hugs. Stella is beautiful x

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  5. That photo of you two is precious. My thoughts are always with you all, Stella is so strong.

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  6. So strong, so brave. You are all never far from our thoughts Chelsea. Sending lots of love, hugs and strength oxox

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  7. you are the strongest bravest woman I know, because you are sharing this with the world, while it's happening to you, you will make a difference to other families facing this horrible disease in the future, and thats a wonderful to do for someone while still facing it yourself. xx

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  8. I often find myself asking this question WHY the children have to suffer at an early stage of life.Did they do any wrong NO.So WHY.
    Life can be so unfair at times.It must be extreemly hard for you and your family Chelsea.I don't know what else I can say or do, but stay strong.x

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  9. Oh honey you are so strong and brave, I wish there was a way I could take some of the weight for you. Always here, always thinking of you and sending so much love xxx

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  10. sending love your way.

    we are often at our strongest and bravest in the moments where we feel the weakest.

    ~x~

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  11. Chels,
    You are an amazingly strong woman and I think of you often and check your blog frequently to see how your beautiful Stella is going. Sending you my thoughts, prayers and love.

    Keep fighting little girl!
    xo

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  12. Lots of thoughts and love being sent your way xoxo

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  13. *HUGS* I'm Michelle's cousin and have been reading your blog to see how Stella is going .. Although I don't know much about the condition I truly believe that she knows how much you all love her even if she cant show it at the moment. Hugs to you all xoxoxox

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  14. Chels, I've been following Stella's journey and I'm sending all my love and support. Thinking of you all. xxx

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  15. Thinking of you all, sending all the positive energy and best wishes I can muster at this time.

    xoxo

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