Saturday, October 29, 2011

Every day everyday people are challenged with a variety of tough and hard times.

It's how your outlook is on life that gets you through.

We could dwell on the bad but we wouldn’t be living for now, enjoying what we have.

What we have is a beautiful little sole who loves her Mum, Dad and Brother.

Stella is just so special and we all are just so damn lucky to know her.

Wednesday, October 19, 2011

Specialists appointments and my birthday


Well its been a little while since I have written a post.
We've been busy catching up with freinds and trying to get Stella a bit more interactive since she had her episode a few weeks ago. She hadn't really been herself but this morning is looking very bright eyed !

Monday I met with Stella's metabolic doctor. It was a quick appointment. Of course I left crying. Then I had to meet with Palative Care. I have been putting off meeting them for some months now and really was not keen on talking to them.
I met with one women, who was nice but they're still not a team I want help from, not for now anyway. The term Palative is awful and not something I think children should ever be associated with.

My birthday was yesterday, one I'm sure I'll never forget with all we've been through these last 7 months. I did what any normal mum does and raced around Stella for some more appointments and school ( Conductive Education )

So every day, things run through my head.
Why us, is a big one......
Also, it's better to have loved then not loved at all.
We have been graced with Stella's prescence and should not take any day granted.

Miss Stella Grace xxx

Friday, October 7, 2011

Jett - Our healing stone

7th October 2011

I went and visited one of my best friends Wednesday.
She said she had bought me some stones from a healing shop.
One was the stone- Jet, and another is for Stella.

I knew Jet was a name of a stone but I never knew the meaning and healing properties.

"Jet is also known as black amber, although it is not actually an amber, but rather fossilized coal. It was used extensively in mourning jewelry in Victorian times and was considered a stone for alleviating and bringing grief to the surface to be healed. It has also historically been used as a protection stone and is said to have very powerful protection energies to ward off evil, negativity, and psychic attacks. It is also said to protect from depression, and increase self-reliance. Mystically, jet is considered a stone of sympathy, healing grief, psychic experiences. It is said by intuitive sources to be an excellent calming stone."

I think Jett entered our lives at the most perfect time. He was obviviously meant to be here with us through this and I know if I didnt have him here I would not be coping.

Im just amazed by the meaning and properties of the stone.
The above is what my Jett is to me, and I know he's helping a lot of other people along the way.

xxxxx Thanks Erin  xxxxx

Thursday, October 6, 2011

Stella's Auction !

6th October 2011

This morning is the start of Stella's Auction that Channy from @ChantelleWattsPhotography is holding.

All the lovely businesses have donated some rather cute things! We're overwhelmed by people's generosity and kindness.

There is some gorgeous stuff that I wouldnt mind bidding on myself !

Auction ends Sunday 8pm, get on over and have a look if you havent xxx

Stella with her baby brother Jett x

Tuesday, October 4, 2011

A scare

Well Im not one to usually let everyone know whats going right when it happens, dont like the fuss, but I did start this blog so I could get suppport each week and let everyone know what is going on without actually having to tell you !

30th September

Stella woke up and I noticed she had a twitch in her right leg.
I didnt think anything of it as she sometimes does twitch when under stress or not feeling well.
By the afternoon the twitch had moved to her upper arm down the right side.
This raised alarm bells in my head- I called Neuro nurse at the Mater straight away, she said to bring her in.
On the way in the car I started to panic as she was moving a whole lot more. We have been instructed to give Stella a rescue medication while waiting for ambulance etc. I decided it couldnt hurt to give it to her, so I put the required amount in the side of her mouth. A minute later she vomited.
We weren't far from the hospital now and thank god because I was really starting to worry.

We raced her up to ED who knew we were coming. Scott carried her through. The doctors asked me what had happened but I didnt have a voice to be able to tell them !  That's how much I was starting to panic.
After 40mins off them setting up the IV's into her arm and leg, trying her on three different strong anti-seizures, she finally settled down. Thank god. I was a mess the whole time as all I could think about was how it happened last time, that day back on the 16th April :(

Our little princess was so brave during it all, and even managed a cheeky smirk once she had settled down.

She spent the night in intensive care and another night in her other home, Ward 7 East. All the nurses were happy to see her, just not under the circumstances.

We took her home Sunday, and she has slept nearly every hour since then.
A seizure can knock your body about in general, add to that the amount of drugs it took to stop it plus her disorder, and it equals a tired little girl.

It was scary but it stopped, and thats the main thing. Last time it just kept on going, even after copious amounts of drugs.

She's one little rascal who I love just so so much xx