Well its been a little while since I have written a post.
We've been busy catching up with freinds and trying to get Stella a bit more interactive since she had her episode a few weeks ago. She hadn't really been herself but this morning is looking very bright eyed !
Monday I met with Stella's metabolic doctor. It was a quick appointment. Of course I left crying. Then I had to meet with Palative Care. I have been putting off meeting them for some months now and really was not keen on talking to them.
I met with one women, who was nice but they're still not a team I want help from, not for now anyway. The term Palative is awful and not something I think children should ever be associated with.
My birthday was yesterday, one I'm sure I'll never forget with all we've been through these last 7 months. I did what any normal mum does and raced around Stella for some more appointments and school ( Conductive Education )
So every day, things run through my head.
Why us, is a big one......
Also, it's better to have loved then not loved at all.
We have been graced with Stella's prescence and should not take any day granted.
Miss Stella Grace xxx