Our Special Stars Journey:
Stella's life with a rare degenerative mitochondrial disorder
You're right - it is a lovely quote.I couldn't give much, but I hope it helps even in some little way. Love to all :)Cat
I had this little story saved on my computer of a butterfly, which I got from a website from a parent who had lost a child to mito disease. I know its not for everyone's beliefs but its a different way of looking at things. It may or not bring comfort but I wanted to share - I have seen too many struggles that I dont feel so alone in this anymore and have found some inner strength somewhere (maybe from my own little angel baby). All parents who have lost a child are forced to gain this inner strength just to face each day. I truly believe my litlte girl is better now wherever she is and doesnt have to struggle - for some reason life here on earth was not in her desiny."A man found a cocoon of a butterfly. One day a small opening appeared and he sat and watched the butterfly for several hours as it struggled to force its body through that little hole. Then it seemed to stop making any progress. It appeared as if it had gotten as far as it could and it could go no further. So the man decided to help the butterfly by taking a pair of scissors and snipping off the remaining bit of the cocoon. The butterfly then emerged easily, but it had a swollen body and small, shriveled wings. The man continued to watch the butterfly because he expected that, at any moment, the wings would enlarge and expand to be able to support the body, which would contract in time. Neither happened! In fact, the butterfly spent the rest of its life crawling around with a swollen body and shriveled wings. It never was able to fly.What the man in his kindness and haste did not understand was that the restricting cocoon and the struggle required for the butterfly to get through the tiny opening were God's way of forcing fluid from the body of the butterfly into its wings so that it would be ready for flight once it achieved its freedom from the cocoon. Sometimes struggles are exactly what we need in our life. If God allowed us to go through our life without any obstacles, it would cripple us. We would not be as strong as we could have been. We could never fly". ~Author unknown**note from the original poster's family: We are rejoicing as we weep; our beautiful butterfly is no longer bound by the confines of her Mito cocoon. With love from xxx who were able to look past the cocoon of tubes and wires, and caught glimpses of her beautiful, colorful wings.